Thursday 16 June 2016

Dyspraxia, anxiety and inclusion

Inclusion is something which has always been at the core of my awareness work and when writing these blogs, as nobody deserves to feel alone and isolated. Inclusion seems such a wide topic, but the little things to make someone feel included can mean the world to not just them but their loved ones too.

I see inclusion coming up time and time again when it comes to dyspraxia either feeling included or people knowing what dyspraxia is. Whether it be learning inside the classroom, P.E or sport or making friendships. The amount of tears of confusion which came from me to my mum growing up, questioning why I never got invited to any parties, why I was always last being chosen for P.E and why nobody wanted to sit next to me at lunchtime. I would always question if I must have done something wrong or if it was my fault. Which as a parent must have been awful for my mum to hear.

 I've always been a very quirky person socially. Growing up the social side of dyspraxia was always something I was very self concious of, but it's something there needs to be awareness of as dyspraxia doesn't just affect people physically.  I've been told I have a very quirky dress sense- my arms can often be found with many bracelets.I have a love of butterfly prints, bows or floral especially in dresses and my fingers can be found with (often badly painted) brightly coloured nail varnish. Social anxiety can often mean I find it takes me a while to come out of my shell and not go into hiding, especially in new and unpredictable situations, and anxiety in general make controlling my emotions tricky,but once I feel comfortable in a situation, I tend to find it easier to relax with those older or younger than me, I've been told I have a very quirky sense of humour (got my dad to thank for that- very easily amused.)

My quirkiness, is something which makes me a unique person,which I see as a strength, it's also made me have a natural empathy for those who may be struggling, but over the years took me a long time to accept, growing up I would do anything to fit in. It has also lead to exclusion, when I was university I remember being ran away from as I was perceived as a weirdo and a freak, I've also faced awful exclusion and bullying
in the workplace. I've spent a lot of my time growing up feeling lonely and by myself, wondering why people were to scared to get to know Rosie. 

 People simply become frightened of things which they don't understand. A lot of people still don't know or aren't aware of what dyspraxia is and how it affects people. It is less known than other neurodiverse differences and difficulties, or if people have heard of it they just see it as clumsiness.
But dyspraxia is something which the general public needs educated on, the more awareness is generated, hopefully in time there will be more understanding. Once you take the time to understand dyspraxia and how it affects someone, ask questions not assumptions, as with any other hidden difference or disability or mental health condition it becomes not so scary. You don't have to have a difference or disability yourself to to take the time to understand. One of the biggest misunderstandings about difference and disability is that people assume that if they invite someone to something. they'll have to spend the evening parenting them or looking after them, for the vast majority of people, far from the case. Sometimes when you struggle with anxiety you might have to cancel plans or leave early, but that understanding and inclusion can help someone take those tiny steps forward. This was something which is echoed in my wonderful friend Alice's most recent blog about inclusion. In it she talks about the the little things people can do and by not making assumptions can make a real difference, to someones mental well being, confidence and how they go about day to day life. Whether as a child, young person or adult.

Behind someone's struggles and of course their strengths, is a person, someone who has thoughts, views, interests and opinions, people with differences and disabilities have the right to have their voice heard and listened to. Sometimes you have to simply dig a little bit deeper when getting to know someone, give them time to come out of their shell, take the time to get to understand things which might be seen as different, and remember that everyone has a different perspective of seeing the world we live in. The world we live in is rich with technology which is incredible, but sometimes we have to put the phone down, the laptop or i pad away open our eyes and appreciate the diversity which is around us.

 As an adult dyspraxic I still find some social situations tricky and will never find it the easiest coming out of my shell. But I am lucky to know some wonderful people who include me for who I am and value having employers who have a lot of empathy towards my dyspraxia and anxiety. Through my work with the Dyspraxia Foundation, I've never felt so included, I've met obviously Alice and also the wonderful Natalie another fellow dyspraxic blogger who has agreed to walk round the British 10k with me next month. Now as someone who felt completely excluded in P.E lessons, came last at everything and has the running style of a dyspraxic duck about to take off  the thought of being surrounded by professional runners, is something which makes me clammy just typing this. Despite it being one massive challenge for me anxiety wise as well as physically, that inclusion and resilience is something which will be getting me round, hopefully raising awareness helping others with dyspraxia feel included too, as I would hate for anyone to go through what I have. Even though the last few months have been a real struggle for me anxiety wise, I hope it shows to others determination.

Myself and my mum have been asked to come to answer questions at Dyspraxia Westminster: Dyspraxia London event and answer any questions parents may have about growing up with dyspraxia, some of the coping strategies I've developed over the years. If you're interested in attending the link is: https://www.eventbrite.co.uk/e/dyspraxia-in-london-tickets-25406892700  I put a lot of my achievements over the last few years down partly to feeling included and I hope my inclusive nature for helping others. As I know from my own experiences that encouragement can give you the courage to ask for help and the strength to keep going when times are tough.

With nominations closing for the National Diversity awards closing on Wednesday. (It seems like this has been going on for ages.) Many of the wonderful people who advocate for dyspraxia awareness have been nominated, it would be wonderful for society to see the what dyspraxics can offer this world, please get behind them over the next few days.
I am grateful to everyone who has nominated me so far, for the kind comments, and the fact that this blog has helped others. If anything has helped at all and you still want to nominate me the link to do so is:  https://nominate.nationaldiversityawards.co.uk/Nominate/Endorse/29669name=Rosie%20Edmondson



Thursday 9 June 2016

Celebrating small accomplishments

Sometimes life can feel overwhelming, like one huge storm or huge bowl of tangled up spaghetti, we feel trapped or caught up in it all and don't know how to move forward.

When you think in a different way, have a disability or a mental health condition whether
you're an child, young person or adult it can be very easy to compare yourself to others and see others progressing a lot faster than you or find tasks which others find easy either terrifying, time consuming or in short just really hard. It can affect your self esteem, motivation and confidence.

It can be very hard and simply overwhelming knowing where to start tasks especially if you struggle with anxiety or being organised and easy to avoid doing the task completely. My boyfriend always says I'm the worst procrastinator he's ever met, when I feel overwhelmed it's safe to say time literally flies by and I wonder where all the hours have gone. Whilst avoidance can initially make you feel better, once you start overcoming those little hurdles and break down the big things into more manageable chunks they can seem a lot less overwhelming. If we are proud of the little things we can achieve it can give us the confidence to take the next steps and the next piece in the jigsaw.

I think it's important to remember, and also any of the parents who read my blogs, you or your child will have your/their unique milestones, your/their own victories no matter how small they may seem.
Dyspraxia affects day to day tasks many take for granted so, it could be making a sandwich, being able to put your socks on, being able to give someone eye contact or manage to clean the house. As you go through life the challenges which approach us change over time, location and situation, so what might challenge us as a  dyspraxic child might change slightly over time as to as a dyspraxic adult. There are also other factors to consider such as: late identification and other differences or mental health issues.

In my last blog I discussed the impact anxiety has on my self doubt and confidence. For me even though I have many coping strategies for my dyspraxia, I have quite a way to go anxiety, but the more anxious I get the more my dyspraxic coping strategies seem to When trapped in that cycle of self doubt it can make everything seem never ending. As someone who if there is something to worry about, I worry about, and knowing where to begin and what to face when sometimes even leaving the front door is a challenge is terrifying in itself can be terrifying, but sometimes you have to go back to basics. When you’re beating yourself up over everything, it’s really hard to be patient and kind with yourself, but you can’t just flick a switch to for these anxious feelings or to feel more confident. Take small steps, and congratulate yourself when you do.



How you go about celebrating these is personal to the person, some people may keep it private, others share on social media, some in facebook groups where people know others will "get it." Children may find things like stickers or certificates helpful, for young people and adults doing something you enjoy or treating yourself. I think it's really important to remember everyone is different and as hard as it is, not to compare yourself or your journey to others.

One thing which might help to write down (or type into a phone or laptop) the good things that happen to you or your child or put together a memory scrapbook or box. It can be things you’ve enjoyed doing, nice things people have said to you. Breaking challenges and tasks into more manageable chunks or lists either written or pictorially and the feel good factor when you tick or cross something off once you've achieved it. Memory can be a huge issue for dyspraxics/dyslexics and having things written down can help give a structure. They don't to be a major achievement – jot down or stick down the tiny things so when you're struggling or feel low you have things to look back on. They can also be a lovely way for you/your child to see how far you have come and how those pieces of the jigsaw I talked about earlier in the blog slowly start to piece together to form the bigger picture.

If you can’t find anything positive to say about yourself, maybe someone else can do it for you. Now I've always been awful at accepting compliments and think people are just being nice but asking a loved one to write down what they see as your positive qualities might give you a boost, maybe you could think of doing the same for someone else. A little bit of kindness and encouragement can go such a long way. I'm so grateful for the kindness in the words of those who have nominated me for a National Diversity Award, when voting finishes (in less than 2 weeks) I plan on printing them off to look at when I don't feel so wonderful. If any of these blogs have helped at all, it would mean a lot if you considered nominating me. https://nominate.nationaldiversityawards.co.uk/Nominate/Endorse/29669name=Rosie%20Edmondson

Confidence isn't something which grows on trees, and you might not have much of it right now, but you can start planting some seeds. With the right self-care, your confidence can slowly start to grow again. If nobody has told you this today, I'm proud of you!



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